Upcoming Events
Brighton & Hove 10km on Sunday 12th April, 2026
Would you like to run the Brighton & Hove 10km on Sunday 12th April and fundraise for PMSF UK?
The 10K route follows the Brighton seafront, taking in some of the city's most famous sights – including the Peace Statue, the West Pier, the Grand Hotel, and the Royal Pavilion.
There are 4 places available for PMSF UK runners, we must let the organisers know by March 12th, so please get in touch with your details asap by emailing: alisonturner@pmsf.org.uk
Click the Image for a link to more information
London to Bright Cycle for PMSF UK
Saturday 2nd of May
Turner Crombie and Frank Thorne will be doing the 55 mile cycle from Clapham Common to Brighton Pier on Saturday 2nd of May to raise money for PMSFUK!
If you would like to donate - just click the picture of the left to access the link!
PMSF International Conference, Aurora Colorado - Date: July 15-19, 2026
PMSF is excited to welcome you to The Climb We Make Together, PMSF’s thirteenth bi-annual Family Conference and the largest gathering of the Phelan-McDermid syndrome community in the world.
Over four incredible days, you will connect with other families, engage directly with researchers and clinicians, and find hope in the latest advancements in care and treatment. From scientific sessions to social events, the conference offers something meaningful for everyone.
Hosted at the stunning Gaylord Rockies in Aurora, Colorado, this event brings our community together like no other. We are so grateful to our sponsors and donors for making this life-changing experience possible, and we can’t wait to see you there.
Click the image to follow to link!
Date: Thursday 22nd October 2026
Phelan-McDermid Syndrome Awareness Day (PMSAD) is held every year on October 22. Families began this tradition to shine a light on Phelan-McDermid syndrome, and today it’s a global effort.
The colour green originated from the colours of PMSF, the longest standing organisation serving families affected by Phelan-McDermid syndrome. PMSF is a global partner of PMSF UK. The meaning of PMSD has expanded to represent hope, strength, and unity. On PMSAD, our entire community comes together to share stories, raise awareness, and show the world the strength of those living with Phelan-McDermid syndrome.
International Phelan-McDermid Syndrome Awareness Day (PMSAD) 2026
Rare Disease Day 2027
Date: 28th February 2027
There are over 300 million people with rare diseases worldwide. On the 28th of February, 2027, there will be over 600 events happening across the globe for rare diseases. Follow this link to get involved by clicking the logo!
