Upcoming Events

Upcoming Celebration - ‘Tea for Ten’ as PMSF UK turns 10!



Milestone Birthday: Monday, 10th June 2024 - celebration weekend 8th-9th June 2024

PMSF UK will be supporting families and friends of people with PMS to organise a tea party to celebrate this milestone birthday! 

If you would like to start planning your celebrations now, please email lyndawhite@pmsf.org.uk

International PMSF Conference



Date: Wednesday, 17th July 2024 - Saturday 20th July 2024

For information on the International conference taking place in Bloomington, Minnesota, USA, please take a look at the PMSF website: https://pmsf.org/conference

Jeans for Genes Day 2024



Date: Monday 16th September 2024

The Jeans for Genes campaign raises awareness of the daily challenges faced by those living with a genetic disorder and raises money to fund projects that make a tangible difference to the lives of those affected.

Jeans for Genes have been a big supporter of PMSF UK over the years and they have recently provided us with a grant for our regional family days.

Please support the Jeans for Genes Week which is taking place between Monday 18th and Sunday 24th September.

Please have a look at their website to see how you can get involved: https://www.jeansforgenes.org

International Phelan-McDermid Syndrome Awareness Day (PMSAD) 2024



Date: Tuesday 22nd October 2024

Every year on the 22nd October, we celebrate International Phelan-McDermid Syndrome Awareness Day (PMSAD).