Upcoming Events
International Phelan-McDermid Syndrome Awareness Day (PMSAD) 2025
Date: Wednesday 22nd October 2025
Phelan-McDermid Syndrome Awareness Day (PMSAD) is held every year on October 22. Families began this tradition to shine a light on Phelan-McDermid syndrome, and today it’s a global effort.
The colour green originated from the colours of PMSF, the longest standing organisation serving families affected by Phelan-McDermid syndrome. PMSF is a global partner of PMSF UK. The meaning of PMSD has expanded to represent hope, strength, and unity. On PMSAD, our entire community comes together to share stories, raise awareness, and show the world the strength of those living with Phelan-McDermid syndrome.
Rare Disease Day 2026
Date: 28th February 2026
There are over 300 million people with rare diseases worldwide. On the 28th of February, 2026, there will be over 600 events happening across the globe for rare diseases. Follow this link to get involved by clicking the logo!
PMSF International Conference, Aurora Colorado
Date: July 15-19, 2026
PMSF is excited to welcome you to The Climb We Make Together, PMSF’s thirteenth biennial Family Conference and the largest gathering of the Phelan-McDermid syndrome community in the world.
Over four incredible days, you will connect with other families, engage directly with researchers and clinicians, and find hope in the latest advancements in care and treatment. From scientific sessions to social events, the conference offers something meaningful for everyone.
Hosted at the stunning Gaylord Rockies in Aurora, Colorado, this event brings our community together like no other. We are so grateful to our sponsors and donors for making this life-changing experience possible, and we can’t wait to see you there.
Click the image to follow to link!