PMSF UK & Ireland Family Map

The map below shows the total number of Phelan-McDermid Syndrome Foundation (PMSF) members diagnosed with Phelan-McDermid Syndrome (PMS) across the UK and Ireland. The numbers given across the map are the totals for each of the regions. For example, there are 31 members diagnosed with PMS in Scotland.

Our 10 regional reps are closely related to a member with PMS and are an incredibly important part of the Phelan-McDermid Syndrome Foundation UK (PMSF UK) team. Our regional reps welcome new families once their completed PMSF membership form has been received. Lynda White is our Lead Regional Rep and Sylvia Millership is our Multi-Regional Rep.

Please click here to visit our regional rep contact page.

Family Map Region Breakdown

Region: Scotland - Regional Rep: Nikki Connolly & Ann Hill - Registered Families: 31

Region: Northern Ireland & Republic of Ireland - Regional Rep: Rosie Bovaird - Registered Families: 41

Region: North - Regional Rep: Joe Novak - Registered Families: 66

Region: East Midlands - Regional Rep:Victoria Feddersen-Scott - Registered Families: 69

Region: West Midlands & Wales - Regional Rep:Tanith Sherwood - Registered Families: 52

Region: East England - Regional Rep: Becky James - Registered Families: 62

Region: London - Regional Rep: Katie Greed - Registered Families: 52

Region: South - Regional Rep: Peter Greene - Registered Families: 49

Region: South West - Regional Rep: Clare Lowry - Registered Families: 8