PMSF UK and PMSF have been global partners since 2013. PMSF are based in the United States and are the International organisation for all people with Phelan-McDermid Syndrome around the world. PMSF UK supports people with PMS and their families in the UK & Ireland. There are almost 3000 people registered globally with PMS and just over 300 people in the UK & Ireland. Although PMS is a rare genetic disorder, we have a very strong, world-wide, support network.

For more information about PMSF, please click here to visit their website.