PMSFUK - Phelan McDermid Syndrome Foundation UK

Victoria Feddersen – Midlands & Wales Regional Rep

 

Victoria lives near Retford with her 2 daughters.

 

Emily, her youngest daughter who is 8, has Phelan-McDermid Syndrome. Emily has mosaicism of the deletion and has a large deletion size. The syndrome affects Emily’s everyday life but she has overcome so many obstacles and achieved so much.

 

Victoria is so proud of her, she is such a joy to be around and every moment spent with her is to be treasured.

 

E-mail: victoriafeddersen@pmsf.org.uk