PMSFUK - Phelan McDermid Syndrome Foundation UK

Upcoming Events

Kat Pond’s London Marathon Challenge 2019

Apr 28, 2019 10:00 am

London

 
Kat’s son Bastian has a rare chromosome disorder called Phelan-McDermid Syndrome (PMS). It’s so rare that he is 1 in 4 million! PMS affects every aspect of his life. He has mobility difficulties including low-muscle tone, sleep problems, behavioural difficulties, medical needs and he is completely non-verbal. He will need additional support for the rest of his life.
 
Last year Kat took part in the Brighton Marathon and completed the course in just under 6 and half hours.
 
Kat has been training hard over the last 5 months in preparation for the London Marathon which is being held on Sunday 28th April. Kat will be running and raising money for PMSF UK. She has already smashed her initial target of £2,000!
 
Please help Kat to make each mile a little easier by sponsoring her amazing challenge.
 
To sponsor her and make a difference to our PMS families please click here.
 
Thank you in advance for your support – go Kat!

PMSF UK & Ireland Family Day 2019

May 18, 2019 10:00 am

Brookfield Primary School, Chester Road, London, N19 5DH

 
Our PMSF UK & Ireland Family Day is being held on Saturday 18th May 2019 at Brookfield Primary School, Chester Road, London, N19 5DH.
 
If you would like more information about Brookfield Primary School, please follow the link. www.brookfield.camden.sch.uk
 
Our Family Day’s are a great opportunity for families, including extended family and carers to spend time together. Families can share stories and experiences and practical information. If you would like to read more about our Family Days please click here.
 
To find out more and to register, please contact Alison Turner: alisonjaneturner@hotmail.com
 
 

See past events