PMSFUK - Phelan McDermid Syndrome Foundation UK

Alison Turner – PMSF UK Trustee


Alison has 3 boys, one of them with Phelan-McDermid Syndrome (PMS). Although her son with PMS is non-verbal, they have a very loud and chaotic house with a patch of deflated footballs growing in the back garden.


Alison has lived in London for over 20 years and loves swimming in the ladies pond on Hampstead Heath. Previously she worked in finance organising conferences and now runs Walk & Talk sessions on the Heath for parents with disabled children.


Alison has found a lot of support through the families in the Phelan-McDermid Syndrome community and feels it is great to be able to share stories, ideas and learn from each other’s experiences.