Penny lives in Bolton with her husband Giles.
Penny’s nephew (Charlie, born in 2008) has PMS and Penny has been energetically fundraising for the foundation since his diagnosis in 2010.
Charlie is mobile, sleeps well (though rises early!) and is continent in the day, but is non-verbal. He is generally very happy as long as routine is adhered to. He loves swimming, school, riding his 3-wheeler bike, waving at all kinds of transport and being with his favourite people, especially his very caring younger brother.