PMSFUK - Phelan McDermid Syndrome Foundation UK

Upcoming Events

Not One, not Two, but Three Peaks Challenge!

Sep 14, 2018 6:00 pm

Highest peaks of Scotland, England and Wales

 
Ruby_Photo

 

Rachel Todd’s daughter a special girl called Ruby has recently been diagnosed with Phelan-McDermid Syndrome. This was a huge shock to the whole family. They all knew Ruby was a special child but didn’t realise how special. There are only 200 people in the UK & Ireland that have been diagnosed with Phelan-McDermid Syndrome (PMS).

 

After Ruby’s diagnosis Rachel and her family set about finding out as much information as they could about this rare syndrome. Rachel found information online and also discovered PMSF and PMSF UK and then joined their support network.

 

Three Peaks Team

Rachel and a team of friends wanted to raise money for PMSF UK to support the charity that will be there to help and support her, her family and their special girl Ruby on their journey.

 
They have decided to take on the National Three Peaks Challenge which involves climbing the three highest peaks of Scotland, England and Wales, aiming to complete this challenge within 24 hours. They will be starting Ben Nevis early evening on Friday 14th September 2018. The total walking distance is 23 miles and the total ascent is 3064 metres.

 

We are delighted that you have chosen to fundraise for PMSF UK and the money you raise will go directly to the families affected by PMS.

 

If you would like to read more about their upcoming journey please visit the Three Peaks Challenge website by clicking here.

 

If you would like to sponsor these intrepid mountaineers, please visit Rachel’s Just Giving page by clicking here to donate and to help this fearless team reach their £500 goal. Please give what you can. A little donation from many adds up!

 

Good Luck to you all from everyone at PMSF UK – we look forward to being able to share your experiences and photos on our Facebook page!

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