PMSF UK AGM 2017
Penny Bradley – PMSF UK Chair
Penny’s nephew has Phelan-McDermid Syndrome (PMS). Penny was appointed as a trustee in 2014 to support the charity in fundraising initiatives.
She lives in Bolton and having taught French for 9 years in Preston, is now a Pastoral Officer at a secondary school in Warrington.
She loves travelling and spending time with her nephews and niece, as well as all her family, godchildren and friends. She became Chair of Trustees in 2017.
Giles Bradley – PMSF UK Trustee
Giles is a founding Trustee of PMSF UK. He was motivated to help found and lead the charity as his nephew, born in 2008, has the condition.
Giles lives in Bolton, close to his nephew, who has a wonderful support network of family and friends. His aim is to help PMSF UK so that other families and people with the condition can benefit from a greater level of financial, emotional and practical support.
Giles is a Managing Director at Accenture, a large management consulting and technology firm. He hopes to help the charity to raise funds and to use his business, technology and project management experience so that the charity can provide maximum support to people with Phelan-McDermid Syndrome and their families.
Anna Brown – PMSF UK Trustee
Anna Brown is a mother of two and Paediatrician who lives in North London. She is currently the Children’s Health Network Director for Barts Health NHS Trust and works as a clinical paediatrician at the Royal London Hospital.
She is also the Clinical Lead for the Children and Young People’s Vanguard programme for Tower Hamlets, which aims to improve health outcomes for local people through working more effectively across organisations. In this latter role she works with many voluntary sector community groups in East London. She also works with children and their families with inherited conditions through her clinical practice in East London.
Anna has been involved with PMSF UK through volunteering at UK family days since 2007. Anna also likes to enjoy the peace and tranquillity of the Hampstead Heath ladies pond all year round.
Natalie James – PMSF UK Trustee
Natalie is a part time teacher and mum of 2 energetic boys, William and George. She teaches food & nutrition at an independent girls school in Bolton and is also the co-ordinator of the lower school careers programme.
Natalie became aware of PMSF UK when her close school friend Kathryn had her first son, Charlie, who was diagnosed with PMS when he was a baby. Since then, she has made it her goal to fundraise and raise awareness for the charity and is extremely grateful to now be asked to be a trustee. The event she is most proud of organising is a team swim of Lake Windermere in August 2017 where over £3000 was raised for the charity.
Most of Natalie’s time is spent watching her boys playing tennis, rugby and swimming and she loves cooking and entertaining for her family and friends when she can.
Andrew Kay – PMSF UK Trustee
Andrew is a founding Trustee of PMSF UK. He has two sons, one with Phelan-McDermid Syndrome. He is a hands on dad and loves spending time with his family. Living in Bolton, much of his spare time is spent seeing family and friends who are a big part of his sons’ lives alongside activities helping with everyday life such as swimming and visits to local parks.
Andrew is a qualified accountant and works full time and tries to find time to play golf too. He hopes to help the charity to raise funds and provide financial and general business support.
Alison Turner – PMSF UK Trustee
Alison has 3 boys, one of them with Phelan-McDermid Syndrome (PMS). Although her son with PMS is non-verbal, they have a very loud and chaotic house with a patch of deflated footballs growing in the back garden.
Alison has lived in London for over 20 years and loves swimming in the ladies pond on Hampstead Heath. Previously she worked in finance organising conferences and now runs Walk & Talk sessions on the Heath for parents with disabled children.
Alison has found a lot of support through the families in the Phelan-McDermid Syndrome community and feels it is great to be able to share stories, ideas and learn from each other’s experiences.
Lynda White – PMSF UK Trustee
Lynda White is grandmother to 5 boys and a girl; one of her grandsons has Phelan-McDermid Syndrome. She and her husband have relocated from London to the West Midlands.
After a 30-year career in secondary education where she was a SENCO and assistant head teacher, and a spell as a career services manager she is now retired.
A keen printmaker Lynda enjoys creating her own prints as well as collecting works by contemporary artists. She also enjoys spending time with family and friends, visiting art exhibitions and reading.