PMSFUK - Phelan McDermid Syndrome Foundation UK

Foundation and Trustees

Alison Turner

Alison Turner

Alison Turner has 3 boys, one of them with Phelan-McDermid Syndrome. Although her son with Phelan-McDermid Syndrome is non-verbal, they have a very loud and chaotic house with a patch of deflated footballs growing in the back garden.

 

Alison has lived in London for 16 years and loves swimming in the ladies pond on Hampstead Heath. She is one of the PMSF Co-Regional Reps for the UK and the Chair of Trustees for the Phelan-McDermid Syndrome Foundation UK. Previously she worked in finance organising conferences and many years ago in NYC at the American National Standards Institute. She loves acronyms.

 

Alison has found a lot of support through the families in the Phelan-McDermid Syndrome community and feels it is great to be able to share stories, ideas and learn from each others experiences. Alison hopes the charity will provide support to the families affected by PMS in the UK.

Andrew Kay

Andrew Kay

Andrew Kay is a founding Trustee of PMSF UK. He has two sons, one with Phelan-McDermid Syndrome. He is a hands on dad and loves spending time with his family. Living in Bolton, much of his spare time is spent seeing family and friends who are a big part of his sons’ lives alongside activities helping with everyday life such as swimming and visits to local parks.

 

Andrew and his family have been raising funds for the PMSF International charity since his son’s PMS diagnosis in July 2010. He hopes to continue raising money for support, research and awareness in the UK.

 

Andrew is a qualified accountant and works full time and tries to find time to play golf too. He hopes to help the charity to raise funds and provide financial and general business support.

Giles Bradley

Giles Bradley

Giles Bradley is a founding Trustee of PMSF UK. He was motivated to help found and lead the charity as his nephew, born in 2008, has the condition.

 

Giles lives in Bolton, close to his nephew, who has a wonderful support network of family and friends. His aim is to help PMSF UK so that other families and people with the condition can benefit from a greater level of financial, emotional and practical support.

 

Giles is a Managing Director at Accenture, a large management consulting and technology firm. He hopes to help the charity to raise funds and to use his business, technology and project management experience so that the charity can provide maximum support to people with Phelan-McDermid Syndrome and their families.

Penny Bradley

Penny Bradley

Penny was appointed as a trustee at the AGM in 2014 to support the charity in fundraising initiatives. Penny’s nephew has Phelan-McDermid Syndrome and she has been energetically fundraising for the foundation since his diagnosis in 2010.

 

She was a recipient of the PMSF UK Outstanding Contribution Award in 2014. Penny lives in Bolton, and having taught French for 9 years in Preston, is now an attendance mentor in Warrington.

 

She loves travelling and spending time with her nephews and niece, as well all her family, godchildren and friends.

Anna Brown

Anna Brown

Anna Brown is a mother of two and Paediatrician who lives in North London. She is currently the Children’s Health Network Director for Barts Health NHS Trust and works as a clinical paediatrician at the Royal London Hospital.

 

She is also the Clinical Lead for the Children and Young People’s Vanguard programme for Tower Hamlets, which aims to improve health outcomes for local people through working more effectively across organisations. In this latter role she works with many voluntary sector community groups in East London. She also works with children and their families with inherited conditions through her clinical practice in East London.

 

Anna has been involved with PMSF through volunteering at UK family days since 2007. Anna also likes to enjoy the peace and tranquillity of the Hampstead Heath ladies pond all year round.

Lynda White

Lynda White

Lynda White is grandmother to 5 boys and a girl; one of her grandsons has Phelan-McDermid Syndrome. She and her husband have relocated from London to the West Midlands.

 

After a 30-year career in secondary education where she was a SENCO and assistant head teacher, and a spell as a career services manager she is now retired.

 

A keen printmaker Lynda enjoys creating her own prints as well as collecting works by contemporary artists. She also enjoys spending time with family and friends, visiting art exhibitions and reading.

Foundation and Trustees